Year in Review

Originally, I was going to post this after my holiday, but I suddenly feel like posting it now since inspiration has struck!

#2017MakeNine roundup

I completed 4/9 projects:

  1. Cashmerette Appleton dress in a tropical knit print. I adore it!
  2. Burda Cowl Neck top in a turquoise cotton lycra. I think it would be great in a different fabric and I have plans for that in the new year.
  3. Burda Sweatshirts. I made 5 in various materials: jersey, sweatshirt material, fleece. I love them all!
  4. Burda Kimono Robe. You know I adore this one. It’s probably my favourite of the year.

The unmade patterns are as follows:

  1. Prairie Style Dress from Burda. I got some lovely polkadot chambray for this, but never got motivated to do a muslin.
  2. Keyhole dress from Burda. I just never got this done. I picked out fabric, but didn’t have the motivation for muslining it.
  3. M7537. I ended up not wanting to make this. I may not but I still like the look of the pattern.
  4. 5 out of 4 free pj pattern. I have tons of flannel in my stash but just never made this pattern for myself. I made it for other people last Christmas, though.
  5. Boho maxi dress from Burda. I have a gorgeous crepe print for this pattern, but didn’t end up getting to it.

I am doing something a bit different for my #2018MakeNine list and just focus on fabric that I want to use. I’ll post that list in the new year.

Top 5 3 Misses:

Burda Cowl Neck top. Just a failure of fabric really.

Burda Cowl Neck Top 10/2011 #135

Blank Slate Barton Shorts. Another failure of fabric. The linen shrunk a bunch when it got put in the dryer. I am definitely going to hang linen to dry from now on. See how disastrous the back became!

An Accidental Capsule Wardrobe

Itch to Stitch Belize Shorts. I’m just not a fan of how they look on me.

Itch to Stitch Belize Shorts

And that is it. I actually really like everything I made this year!

Top 5 Hits

With so few misses, this was so difficult to choose!

Decades Everyday Chore Skirt. I love this skirt so much. The colour, the black strip of bias tape, the look. I feel wonderful in it.

Decades Everyday ESP dress. Wonder Woman! Need I say more?

Decades Everyday ESP Dress

Cashmerette Appleton. The tropical print was absolutely perfect for this dress and I love the way it looks on me.

Cashmerette Appleton Dress

Cashmerette Lenox Dress. I love it. I put a lot of work into the embroidery and adore it.

Cashmerette Montgomery Shirtdress

Cashmerette Springfield Hack. I wear this top at least once a week. I love wearing it and can’t wait to make more. I have another cut out, but haven’t gotten around to it just yet.

Cake Patterns Pavlova Skirt

2017 Summary

In 2017, I made 76 things. It’s lower than 2016 with 107. Not surprising considering how sick I was this year, but a ton with all my health issues! I’m really proud of what I accomplished this year. I visited the ER twice this year and still managed to make 76 things! Go me!

I had the usual December rush of getting gifts made but also with an additional CSC theme month challenge and sewing for an upcoming vacation. I will eventually share all those items in 2018.

Some months I made very little and other months I made a ton indicative of my up and down health.

Gifts top the list of items made, but second is dresses. Swim/beachwear are third (still have to share those!) and fourth is tied between shorts and skirts.

Cashmerette is an obvious winner. Second place goes to Burda and third is Blank Slate Patterns. I love seeing how this list changes from year to year as my style evolves and as pattern companies expand sizes.

In the new year, I will post about plans and goals and my #2018MakeNine.

Happy Holidays everyone!



PJ Party Time! Burda Neglige and Kimono Robe

Long time no blog posts! I sound like a broken record, but I was sicker than usual in November and early December and then I had to scramble to get a bunch done. I’ve sewn 50 yards in December! I’ll probably be sharing the things I made with those 50 yards in January along with my TOP 5 2017.

For CSC Party Time, I decided to have a fancy PJ party and made two Burda Magazine patterns: Burda Lace Neglige 01/2017 #125A and Burda Belted Kimono Robe 01/2012 #134AB. I shared this on the CSC the other day, but I thought I would share it here with a few more details.

For plus-sized intimates, there are not a lot of options, but magazines like Burda sometimes have themed months and January at Burda usually means either activewear or intimates. While their plus-sized patterns can often be pretty shapeless and uninteresting, there are occasionally some great collections and actually in the past year there have been more wins than duds for me. The January 2017 intimates collection is one of my favourites and I am slowly going to make my way through it. Burda plus sizes are 44 to 52. The sizing is a bit more generous than other companies and goes up to a 48 inch bust and 50 inch hip. That being said, I’m still a bit outside their range with a 50.5″ bust and 54/56″ hips. I am a fan of Burda patterns and find them well-drafted and often lack the major issues that I see in other Big 4 companies (larger than life shoulders and armsyce issues). I will always need to narrow shoulders in any company, but I narrow significantly less with Burda and sometimes don’t need it depending on the design. I have never needed to raise the armsyce or deal with gaping at the bust/armsyce with their patterns. Often, instead of grading up their patterns, I just do a quick 2 inch FBA and get a good fit. I haven’t made a ton of their patterns yet, but that’s my experience so far.


Based on my measurements, I graded size 52 up by 2 inches in both patterns using the slash and spread method effectively making a size 54. I did this instead of an FBA in order to achieve a loose fit all around. This worked really well, but made the darts on the nightgown a bit off and the neckline is a bit wide (would have likely been fine had I added in the lace). Instead of redrafting the darts on paper, I sewed up the back seam and side seams and pinned the pattern to get the darts in the right place. Curved bust darts (is there a different word for this type?) like this can be a bit difficult, especially with a large bust. The darts aren’t perfect and do angle in a bit at centre front. My advice, if you choose to sew this up, is to trim out the centre of the dart before sewing to give you 5/8 inch seam allowance (after pin-fitting them, though, you don’t want to trim and then not have them fit correctly) and then grade the seams to a 1/4 inch again after sewing. It will help you get a better handle on the fabric and make it a bit easier to sew. Curved bust darts like this aren’t used very often in patterns these days (they tend to be seen more in vintage patterns), but can really create a lovely fit and shouldn’t be feared. For the nightgown, I shortened it by about 12 inches in the front and 11 inches in the back for a slight high/low hem. What can I say, I prefer a short, short nightgown. For both patterns, I did french seams for a nice inside finish. I finished the bust dart seam allowances using my serger. The more difficult of the two patterns was definitely the lace nightgown. I’m not super proud of my sewing on that at all, but I really like the finished garment. Not perfect by any means, but lovely to wear.


Burda instructions are famously sparse and these are no exception. I would definitely list the patterns as intermediate based on the lack of good instructions. The construction of both is very basic, though, so they aren’t advanced patterns.


The fit is robe-like for the robe – loose fit and comfortable to wear. I immediately want to make a bunch more. But how many fancy robes does one person need? All of them, Andie, all of them. The original pattern calls for velvet and I can see that being super gorgeous! I can also see making a basic flannel version or a see-through lace version. Mrowwwwrrrrrr.


The fit on the nightgown could be better. I actually need a small FBA as there is some pulling forward of the side seams. I could also remove an inch from the centre back and bring the shoulders in a bit since the neckline does sit wide. At the end of the day, though, these are PJs and don’t require a lot of overfitting since they will not be seen that often by more people than my husband and the internet in this post. Hahah. I’ve never felt more fancy and luxurious and that is definitely something to celebrate.


In terms of time, both patterns were made at the same time and in total took about 8 hours. I’m definitely going to make the robe again.


The fabric I used for the nightgown is stretch satin with a crepe back. I didn’t use lace at all. I had mint stretch lace that would have looked nice but didn’t want to be sewn on to the stretch satin at all so I left it off and I still like the nightgown. I used the stretch satin as a contrast for the robe along with flannel backed satin to make it extremely cozy as well as luxurious.


What’s in the glass, you ask? Root beer. Nothing like drinking soda out of fancy crystal wine glasses! Now that is a party!

TL:DR Review

  • Pattern: Burda Lace Neglige 01/2017 #125A
  • Pros: Love the curved darts. They give the nightgown extra shape and interest.
  • Cons: The usual sparse instructions issues for Burda patterns.
  • Make again?: Absolutely after a few fit adjustments
  • Rating: pink-star-black-md pink-star-black-mdpink-star-black-mdpink-star-black-mdwhite-star-black-md4/5 stars
  • Pattern: Burda Belted Kimono Robe 01/2012 #134AB
  • Pros: Everything! I adore this pattern!
  • Cons: The usual sparse instructions issues for Burda patterns.
  • Make again?: Absolutely! Is it possible to have more robes than actual clothes? Hmmm….
  • Rating: pink-star-black-md pink-star-black-mdpink-star-black-mdpink-star-black-mdpink-star-black-md5/5 stars

If you are wondering why I gave a different rating on the CSC, it is because the rating system is different for reviews. My 5 stars are based on how well the sewing went, the fit, and the size range and most importantly how I feel about the pattern. 🙂


Party Time. Excellent. *air guitar motions*

December is Party time at the CSC! It’s a fun themed month all about celebrating. And the theme is pretty open so you don’t just need to sew up a fancy party dress or suit. You could sew a bathing suit for a pool party or pjs for a pj party.

I thought I would share my plans for the theme.

I plan on making fancy pjs!

Back in the early summer I got flannel back satin in a mint colour.

My plan since has been to make a fancy robe using a Burda kimono pattern:

My plan is to also trim it with this pink satin that I got:

The pink satin has stretch and is going to be used as the main fabric for a Burda nightgown:

The lace trim is going to be this mint stretch trim to match with the robe:

The whole project will be shared on the CSC when it is done. Luckily, I have a swanky new photography set to keep me inside for pictures. 🙂

What are you planning for #CSCPartyTime?

Burda Cowl Neck Top

The Burda cowl neck top (10/2011#135) was part of my 2017 Make Nine so I wanted to share it for that reason. I don’t love it, but I don’t hate it. I really think the issues are due to the fabric. The top really requires a fabric with enough drape to make the cowl really look gorgeous. On the bolt, the fabric appeared to be nice and drapey, but it wasn’t really. It washed up a bit crisper as well. A knit with rayon would work beautifully in this top.

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The top has raglan sleeves and an inset for the front and back for the neckline/cowl. The sleeves are also in the original pattern ruched at the side from forearm to hem. I chose to make sleeve bands instead since I doubted I would like the ruching. In terms of fit problems, the sleeves fit like wings and the bust is pretty good. The cowl neck could be more cowl-like. More room in the hips would be good.

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In terms of sewing, it’s not my best work. The cowl was difficult to get in and there is something weird with the side seams.

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And yet the times I have worn it, I really loved wearing it. Just goes to show that a garment doesn’t need to be perfect for you to enjoy wearing it. It’s a super comfy top and I just love the colour of it. The length is perfect for wearing with jeans. Overall I feel pretty great in it even though I know there are fit problems and sewing problems.

Go figure.

Burda has the usual sparse instructions so this top isn’t for the faint of heart. You just sort of have to “interpret” their instructions or go your own way like I do 90% of the time.

Speaking of 2017 Make Nine, I’m on track to get five out of the nine done. Way better than my 2016 Make Nine where I made exactly zero of the things I planned.

Here is my #2017makenine Except for the middle column, these are @burda_style patterns. I made a goal to make more Burda patterns since I love the designs and think the block fits me pretty well. Plan is to make at least these 6 this year starting with the grey sweatshirt using some cat print terry I have. In the middle column, I want to make a maxi length @cashmerette #appletondress with some lovely tropical fabric I recently acquired in a swap. I love #M7537 from the @mccallpatterncompany early spring release. I can see it becoming a quick favourite. Finally, I have a bunch of flannel in my stash that is due to become pjs using the free pattern from @5outof4patterns If I bust that stash, I clear out an entire shelf of my stash! And I get many cozy pjs to wear about the house in various lengths for the year. Last year I didn't get any of my list done. This year feels pretty reasonable and should be doable. 😁 #sewing #sewcialists

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I think the summer dresses just aren’t going to happen, but the pj pants and the kimono robe will for sure. I finished my Appleton dress, Burda sweatshirt and now my Burda cowl top. I would love to get the top left corner Burda dress done sometime this winter. I have fabric for the other Burda dresses, but it doesn’t seem to make sense to make summer dresses when there are leaves on the ground so those will likely be pushed over to my 2018 Make Nine list. The McCall’s dress fell off my to make list. I ended up buying fabric for M7624 instead. Hahha oops. I hope to make view  C or D depending on how much I can squeeze out of the fabric at some point during the winter.

I’m just not sure that both of those dresses will happen in 2017. They may be muslined in 2017, but not finished up.

TL:DR Review

  • Pattern: Burda cowl neck top (10/2011#135)
  • Pros: Even though it was tough to put in, the separate pieces for the back neckline and the cowl make for a nice shape and lovely finish. I really like the relaxed fit and with some tweaks it would be perfect.
  • Cons: The usual sparse instructions issues for Burda patterns.
  • Make again?: With some nice drapey rayon knit and a few fit/style mods. I would increase the cowl width and try to figure out how to adjust to get rid of the flaps of fabric in the sleeves above the bust.
  • Rating: pink-star-black-md pink-star-black-mdpink-star-black-mdpink-star-black-mdwhite-star-black-md4/5 stars


Cashmerette Rivermont Pattern

I tested the Cashmerette Rivermont pattern and really fell in love with it.  The pattern includes a sheath dress and a peplum top with a high scoop neck. The neckline has shoulder to shoulder facings. And there are big pockets in the sheath dress. The pattern called for medium weight ponte knit or lightweight neoprene/scuba.

When Jenny sent me the pattern preview, I jumped on it. We actually tested back in July/August. I bought some lovely ponti de roma in a deep purple from Fabricland to make my first version.


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I sent off the results of testing and hadn’t hemmed the dress yet. I usually take off 3-4 inches from the hem of Cashmerette patterns unless I feel like leaving them long (the Webster dress I left longer). I’m considering going back  and hemming it about 4 inches shorter. Also, because the hem got all wavy in sewing and even after pressing it wouldn’t go flat.

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I realized as I was taking these pictures that most are with my hands in the pockets. They are such deep cozy pockets that I just kept putting my hands in there. Ha! I styled it with a belt from Addition-Elle. That belt is one of my favourite wardrobe accessories.

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I adore purple on me. Weirdly I don’t have a lot of it in my wardrobe. This piece was the start of getting it back into my wardrobe. 🙂

My second Rivermont dress was also using the tester pattern. I had a wedding to go to in Killarney at the end of September and really needed something nice to wear. I got some peach scuba in a Bunz trade at the end of August. Over 86 yards of awesome fabric for a $40 gift card to Staples! Bunz is crazy good. What I noticed was the light peach colour was a great match for my skin and then my brain just needed some lace overlay for it. I got some royal blue stretch lace from Fabricville (sadly not available anymore) and got started the week of the wedding. Yes, I was finishing the dress up the night before we left.

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You can see how the scuba with its lower stretch percentage and stiffness makes it fit a little bit differently. But it still looks awesome imho.

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After seeing all the pictures with my hands in my pockets, I basically was self conscious and kept them out for these pictures. LOL. I styled this dress with a thin gold belt from Winners.

The neckline was fixed for the final version. It doesn’t really bother me in either of these dresses. It’s much better in the ponti version since the fabric has better recovery. The scuba version definitely has a more pronounced neckline issue as well as an issue with gaping pockets. I used a lighter jersey to line the pockets due to a few reasons. I didn’t want to have too much bulk from sewing through three layers of fabric at the waist and I didn’t have enough fabric. The dress also had to be cut 4 inches shorter, but that turned out to be a great thing since I love the length.

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I really wanted to take these pictures and get the post ready for the launch of the pattern, because I love it so much. I had a rough September and October due to having gluten back in my diet in order to get tested for celiac disease and spent a lot of the time sick. I’m back on my gluten free diet now and automatically feel better. I mean I still have a chronic illness, but a chronic illness plus an extra amount of horrible migraines, allergy attacks, GI issues, and not being able to eat for fear of throwing up is the worst. I often have all of these issues, but not to that degree. And of course, it is fall here, so if it isn’t me being sick, it’s raining. I actually managed to take these after it had rained off and on all day.

There will be many more Rivermont iterations in the future. I plan on making a stretch velvet peplum next. 😀

Pattern Hacking Smorgasbord

First off, thank you for the wonderful comments and messages on all my social media formats on my last post. Your support means so much to me and helps life me up on bad days. I cannot thank you enough for both reading my posts on chronic illness and responding to them. Even a “like” makes me feel better. Chronic illness can be so isolating and lonely, but I love having an online community to make that feel less and less true. I may be at home in bed, but I am able to feel the love. ❤

I can’t use the word Smorgasbord without thinking of Charlotte’s Web.

Man, that rat knows how to live. It is living its most authentic life. Hahah.

August was pattern hacking month at the CSC and I got quite a bit of inspiration from the posts that fueled some recent sewing.

First up on my recent pattern hacks, is a Cashmerette Concord T-shirt. Anyone who follows me knows this is my TNT t-shirt pattern. I just adore it. It fits me perfectly. So why even try another t-shirt pattern to achieve what can easily be done with an existing pattern?

I didn’t even make a paper pattern for this. I was feel super lazy and having a low energy and medium pain day. I grabbed my tailor’s chalk and just made the adjustments with that on the actual fabric. I had minimal fabric leftover from my friend’s dress, but it was determined to become a 1980s inspired top.

The shirt is a bit of a flashback to an early 80s top that I vaguely remember and can’t find a single picture of. The 80s top had a tie neckline with a keyhole too and puffed sleeves with cuffs and a banded hem. Because of the small amount of fabric there was no way I could stripe match and I had to cut it shorter than I would prefer. I cut the back going in the opposite direction from the front and failed to remember to take a picture of that.

It was an easy top to hack. I extended the width of the sleeve across the entire sleeve from the centre. This gives enough width for the gathers at the sleeve head and the gathers around the sleeve band. I cut the sleeve band against the grain. This does effect the stretch of the fabric so I had to extend the length. I am probably about an inch and half too short for that so I do find the sleeve band doesn’t quite hit in the right place. But I was working with very little fabric and didn’t have enough for a longer band. I used my chalk to draw the shape of the keyhole and then cut a very long neckband. I also cut a small piece of fabric to finish the keyhole. The easiest part was likely the bottom band. You cut it slightly shorter than your hem. I didn’t even need to really cut it. It was the bottom edge of the fabric after cutting off the sleeves on the fold. I think I may have cut it a bit shorter and that is it.

Well I like this so far! #concordtshirt #sewing #sewcialists

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Cashmerette Concord T

I just love the top and really want to make more that look the same. Since I didn’t make a pattern paper for this, I will have to do backtracking and make it. I can’t kick past Andie for not doing it. It was an accomplishment for me to cut out the top that day. No way I was putting my spoons toward making a pattern.

Next up on the pattern hacking smorgasbord is a *finally* finished pleated Cake Pavlova skirt. Another TNT pattern for me. Speaking of TNTs, which is all that I used in this post, have you heard of the upcoming Sewcialist TNT month? I’m pretty excited for it! Clearly TNTs have also been on my mind.

Cake Patterns Pavlova Skirt

The skirt is black so unfortunately you might not see the pleats I added. There are two pleats halfway between the centre and the side seam on each side and on both the front and back.

A note on the socks. They are the Wolf and the Tree Going Rogue socks. I never got around to posting on them and these are the only pair I made. I will say they run bigger than I thought they would and I had to size down significantly. I really love them though and will eventually get around to making more since I am on board with matching my socks and cardi (cardi is my Gryffindor Sophi Cardi).

Cake Patterns Pavlova Skirt

There is a side seam pocket on the left side of the skirt and the zipper is on the left side of the skirt.

Cake Patterns Pavlova Skirt

The above picture highlights the pleats a bit better. The fabric is from the thrift store and is a lovely and extremely soft cotton stretch suiting. I had no idea fabric like that existed, but it is lovely. The waistband is unfortunately a bit tight. It’s due to the interfacing on the waistband. I am hoping it relaxes with washing. I should have used knit interfacing to make for pie room in the waistband. I started making the skirt earlier this year and left it aside to take out the waistband. I’m kick myself for not removing the interfacing at the same time. 😦

As long as I am not swollen or having GI issues, I can wear the skirt without issue. It’s just not going to be one I reach for on bad days.

Finally, my last pattern hack is using the Cashmerette Springfield top.

While at work one day, I got it in my head and HAD to draw it out.

I have been wanting a tie-neck top for a while and had never gotten around to it. I saw Elizabeth make a top with ruffle cap sleeves and just had to make one. Then my brain suddenly put the two together at work and I freaked out because it became my dream top. Add to that a lovely tunic length and a high-low split hem! OMG. A veritable smorgasbord!

Cashmerette Springfield Top

Cashmerette Springfield Top

Edit: No shame posting the back with a big sweat stain from having worn it all day. Hahah. 😛 Shirt is poly crepe so no breathing! Also as an aside… I’m noticing how wonky my ankles are looking here. Yeay, EDS? lol

For this pattern hack, I had changed the neckline to a v-neck. I just drew the line on my pattern and folded it under. I extended the front by 2 inches and the back for 3.5 inches for the high-low hem. The top already has a split hem. I used the pattern view with the princess seams on the back. I do see from pull lines that I might benefit from going up a size in the butt area due to the extra length and needing to skim over my widest asset (har har). But otherwise, the fit is good. I added some handstitched gathers to the shoulder area of the neckband to help it sit well. The ruffle cap sleeves are just long rectangles gathered. The sleeve and neckline are finished with bias binding.

Cashmerette Springfield Top

Cashmerette Springfield Top

Cashmerette Springfield Top

Really feeling myself in that picture. Ha!

Cashmerette Springfield Top

A bonus to this post is my alteration of my Auberley dress. The sleeves never quite felt right. They were big enough, but with EDS sometimes woven sleeves can be too constricting and can cause issues. I split them down the centre and then added some cute cuffs with snap closures and gathered the sleeve hem into them. What I achieved is a sleeveless feel for my wonky joints but a sleeved look that is “on trend.”

And now after all that, I want some fair food. Bring on the cotton candy and popcorn!

How the Medical System Fails People with Chronic Illness

Trigger Warning: Suicide awareness


I have many doctors appointments and medical tests on a regular basis, but I still manage to not get effective care from many of my healthcare providers. My chronic cough remains undiagnosed and not effectively treated. My allergy attacks are getting more frequent and leaving me breathless and drugged on allergy meds and asthma meds. I have multiple joint issues that are left untreated and am told they will get worse, but there is no solution for stopping the degeneration. Doctors tend to eventually turn me out their doors with no available solution.


Because I am “not bad enough yet” and there is very little focus on preventative medicine. When you are “bad enough,” they treat you with the next step of care, but until then you are not given effective care.

When you get diagnosed with a chronic illness or you suffer from chronic pain, you are constantly asked about your mental health. How are you coping? Are you able to get out of bed on a regular basis? Does it interrupt your daily life? etc. etc.

Every new doctor I see asks me these exact questions. If you aren’t coping, they go to the next step in their method of care and that step usually includes a drug program or risky injections or steroids to help get you out of bed and cope. If you are “coping,” you are considered “not bad enough yet” and continually told to self-manage your symptoms and try physio-guided exercise, diet changes, supplements, etc. All of these alternatives help in a small degree, but they fall short.

But how do you actually measure “not bad enough yet” for someone with chronic illness or pain, especially when they have lived with it their entire life like me?

I also have the experience of having cognitive behaviour therapy (CBT) tools to help me cope with pain on a daily basis and “push through” my bad days so I can do things like have a shower, make food, go to the bathroom.

Doctors for the most part lack the ability to understand chronic illness and pain. The pain scale is different for us. The ability to cope is different for us, especially if there is a background of CBT or other coping mechanisms. They often don’t understand that the fact that I am seeking help from and seeing every specialist means I am bad enough. I’ve lived with chronic illness long enough to cope with bad days and live with high pain even on “good days.” And if I try to help them understand, they often say something along the lines of “I don’t want to start you on narcotics yet” and they don’t offer an alternative.

I don’t have a perfect solution. I’m not an expert. I will say that not being accused of being a drug seeker would be a great start and listening to what is happening to the patient as well as understanding that I may be “coping” but I am not doing well. The more bad days I have, the less and less I will be able to cope. My “good days” are days most would consider terrible.

I’ve overcome depression and suicide attempts to really value my life and value my abilities. To let pain stop that enjoyment for me is too late in my opinion and if that is “bad enough” for the medical professionals, I shudder to think what other patients are falling through the cracks – patients without my coping mechanisms – because the medical system is failing.

There is no mystery that the rate of suicide in the chronic illness community is higher. I have lost a family member with chronic illness to suicide.

I am not at risk myself. I have a fantastic family and friend network that is there for me plus the coping mechanisms to help me through the dark days, but I am at risk of losing my ability to cope. I am losing my ability to work and earn income. I am losing my ability to do basic tasks. I am losing and doctors are not helping.

We need an overhaul of how chronic illness is assessed and diagnosed. We need a new scale of understanding how a patient is coping. We also need a better system in place that considers a comprehensive view of patient care and has all of our health care providers talking to one another. With that conversation, maybe a real healthcare plan could be drawn up and the patient could feel hope. We need more patient advocates in health care policy and administration. We need to not wait until a patient is “bad enough” and make sure they don’t get there.

I see the start of this change, but it can’t come quick enough. We’ve already lost so many chronic illness warriors. Let there be not one more.